How to Explain Dementia to a Child | Practical Advice

Talking to a child about dementia can feel daunting, especially when you’re still processing the changes yourself. But being open and honest, in a way that matches their age and understanding, can help children feel safe, reassured and involved.

At Trinity Homecare, we believe families should be supported at every step of their journey — and that includes helping children understand what’s happening when a loved one is living with dementia.

Here’s how to approach those conversations with care and confidence.

How to talk about dementia with children and young people

Helping a child understand dementia begins with open, age-appropriate conversations. Here are some gentle, effective ways to support them as they navigate this experience.

Start by listening

Before offering explanations, give them space to share how they feel. Ask what they’ve noticed or if they have any questions. Children often sense more than they say, and listening carefully helps you understand what they might be worried about.

Use clear, simple language

Keep your explanations honest but easy to understand. Avoid complex medical terms. You might say something like, “Dementia is an illness that makes it harder for someone to remember things or know what’s happening around them.”

Acknowledge their feelings

Let children know that whatever they’re feeling — sad, confused, angry or even frustrated — it’s completely normal. Reassure them that they can always come to you and talk without being judged.

Talk about what might seem strange

Prepare them for behaviours that might feel unusual, like a loved one forgetting names or getting confused about where they are. Help them understand that these changes are part of the illness, not something the person is choosing to do.

Focus on what stays the same

It can be comforting to remind children that while dementia changes how someone behaves or communicates, it doesn’t take away love. Say things like, “Even if Grandad forgets our names sometimes, he still loves us very much.”

Be patient

Children might need to hear the same explanation more than once. That’s okay. Try not to rush the conversation — and be ready to revisit it when they’re ready.

Reassure them

Remind them that dementia isn’t something they can catch and that it’s not anyone’s fault. Offer hugs, comfort and reassurance — and don’t be afraid to laugh together if the moment feels right.

Involve them in small ways

Let them stay connected by helping with gentle activities like drawing, playing music, or looking at photo albums together. These small acts can make a big difference in helping children feel included and valued.

Use helpful tools

There are plenty of children’s books, videos and activities designed to help explain dementia in a calm and engaging way. Storytelling, memory books and visual aids can help bring comfort and understanding.

Supporting children and young people when someone has dementia

When someone close to a child is living with dementia, it’s natural for them to feel confused, upset or unsure of what’s happening. Children and young people need reassurance that they are loved, included and supported — especially when the adults around them may also be feeling stressed or preoccupied.

One of the most helpful things you can do is simply be present. Let them know that their feelings are valid and that it’s okay to talk about what they’re experiencing. Encourage open conversations and check in regularly, even if they don’t always feel ready to talk.

Here are a few gentle ways to support them:

• Reassure them that their feelings are normal
• Let them know they can always talk to you
• Learn about dementia together using trusted resources
• Keep explanations simple, honest and age-appropriate
• Involve them in small ways, like reading, drawing or sharing memories
• Focus on what their loved one can still enjoy and do
• Encourage positive time together through familiar activities
• Let school or college staff know, so they can offer extra support
• Consider talking therapy or counselling if they’re struggling

Above all, remind them that they’re not alone. With love, patience and open communication, children and young people can play a meaningful role in their loved one’s dementia journey — and feel supported every step of the way.

How children and young people may respond to dementia

When someone they love is diagnosed with dementia, children and young people can experience a wide mix of emotions — and they may not always have the words to express how they feel. Understanding their reactions can help you support them with patience and care.

Common emotions include:

• Confusion about what dementia is and how to behave around it
• Sadness or grief about changes in a loved one
• Fear about the future or whether they could get dementia too
• Embarrassment, especially in front of friends or peers
• Boredom, frustration or irritation at repeated questions or behaviours
• Anxiety about saying or doing the wrong thing
• A sense of guilt, helplessness or feeling ‘in the way’
• Feeling rejected or forgotten if adults seem distracted or stressed

Some children may try to hide how they’re feeling, while others may act out, withdraw or become overly involved in trying to help.

Signs of distress might include:

• Difficulty sleeping or frequent nightmares
• Changes in appetite or unexplained aches and pains
• Trouble concentrating or a drop in schoolwork
• Seeming unusually quiet, cheerful or detached
• Becoming tearful, clingy or needing extra reassurance
• Avoiding home or spending more time alone
• Taking on adult responsibilities too soon or feeling overwhelmed by care

Every child is different, and their age, personality and relationship with the person with dementia will all play a part in how they respond. What matters most is that they feel seen, heard and supported — in a way that respects their feelings and helps them feel secure.

Dementia care at home

At Trinity Homecare, we understand that a dementia diagnosis can be overwhelming. We offer ‘Outstanding’ rated dementia care in the comfort of your own home. Studies show that 85% of people prefer to stay in their familiar surroundings, and we’re committed to making that possible.

With professional care tailored to your loved one’s needs, we help them enjoy a happy and fulfilling life while staying at home. For more details on how Trinity Homecare can support you, explore our live-in dementia care guide and discover the compassionate care your family deserves.

Talk to us today

At Trinity Homecare, our ultimate goal is to enrich your lifestyle in the comfort and familiarity of your own home. This allows you to live the independent lifestyle that you love without the daunting thought of moving into a care home.

Call us now on 0207 183 4884 in confidence for a free no obligation quotation. If enquiring outside of our opening hours, please complete our online form and we will contact you the next day.